Raising A Rare Girl

Download or read book Raising a Rare Girl written by Heather Lanier and published by Penguin. This book was released on 2021-07-06 with total page 321 pages. Available in PDF, EPUB and Kindle. Book excerpt: “A remarkable book . . . I found myself thinking that all expectant and new parents should read it.” —Michelle Slater A New York Times Book Review Editors' Choice In Raising a Rare Girl, Lanier explores how to defy the tyranny of normal and embrace parenthood as a spiritual practice that breaks us open in the best of ways. Like many women of her generation, when Heather Lanier was expecting her first child she did everything by the book in the hope that she could create a SuperBaby, a supremely healthy human destined for a high-achieving future. But her daughter Fiona challenged all of Lanier’s preconceptions. Born with an ultra-rare syndrome known as Wolf-Hirschhorn, Fiona received a daunting prognosis: she would experience significant developmental delays and might not reach her second birthday. The diagnosis obliterated Lanier’s perfectionist tendencies, along with her most closely held beliefs about certainty, vulnerability, God, and love. With tiny bits of mozzarella cheese, a walker rolled to library story time, a talking iPad app, and a whole lot of pop and reggae, mother and daughter spend their days doing whatever it takes to give Fiona nourishment, movement, and language. Loving Fiona opens Lanier up to new understandings of what it means to be human, what it takes to be a mother, and above all, the aching joy and wonder that come from embracing the unique life of her rare girl.

Download or read book Raising Jess written by Vickie Rubin and published by Page Publishing Inc. This book was released on 2021-08-02 with total page 127 pages. Available in PDF, EPUB and Kindle. Book excerpt: 2022 Readers' Favorite Gold Medal Winner in Non-Fiction - Memoir Genre Award-Winning Memoir “Courageously exploratory, making for a truly enlightening read." (Kirkus Reviews) Raising Jess is the powerful story of one family’s survival when faced with adversity. Written with compassion, honesty, and humor, it tells of a family changed forever by the birth of a child with a rare chromosome deletion and their courageous decision to choose hope. Facing the challenges of caring for her daughter, marriage struggles, and the question of having more children, Vickie Rubin gives a glimpse into the world of her family and transformation while Raising Jess. This beautiful, gripping memoir will delight and leave you wanting more. "This is an inspiring story of tragedy and triumph, brilliantly and powerfully told. I highly recommend it." - Ashley Adams, Author “This is a triumphant tale.” - Cathy Shields, Author" "A heartwarming, compassionate story. This story will bring tears to the eyes of readers as they are educated and enraptured by one family’s journey with a child with special needs.” (5-Star Review by Emily-Jane Hills Orford for Readers' Favorite) “Couldn’t put it down! Raising Jess is an amazing book! Vickie Rubin’s writing is masterful! Highly recommend.” - Mike Steklof, Ed. D. “Beautiful Insightful Narrative That Resonates Deeply. I feel enlightened, inspired, hopeful and transformed by Vickie's story.” - Janet G. “Beautifully written and a must-read for anyone that knows someone with disabilities or wants to know a family’s perspective.” - Jill G. “I couldn’t put it down. Get a copy of this book—so pure, raw, and beautiful.” - Ashleigh Bussinger “Vickie reveals her Soul to the reader. A Must-Read for All” - Lori N. Vickie Schlanger Rubin, M.S Ed., three-time award-winning author, contributes essays to Newsweek, Buffalo News Opinion, and blogs worldwide. Vickie is an experienced public speaker and passionate advocate for families of children with disabilities. Her blog, Vickie's Views (www.vickierubin.com), gives a heartwarming and humorous view of everyday life.

Download or read book Persian Girls written by Nahid Rachlin and published by Penguin. This book was released on 2007-12-27 with total page 308 pages. Available in PDF, EPUB and Kindle. Book excerpt: For many years, heartache prevented Nahid Rachlin from turning her sharp novelist's eye inward: to tell the story of how her own life diverged from that of her closest confidante and beloved sister, Pari. Growing up in Iran, both refused to accept traditional Muslim mores, and dreamed of careers in literature and on the stage. Their lives changed abruptly when Pari was coerced by their father into marrying a wealthy and cruel suitor. Nahid narrowly avoided a similar fate, and instead negotiated with him to pursue her studies in America. When Nahid received the unsettling and mysterious news that Pari had died after falling down a flight of stairs, she traveled back to Iran--now under the Islamic regime--to find out what happened to her truest friend, confront her past, and evaluate what the future holds for the heartbroken in a tale of crushing sorrow, sisterhood, and ultimately, hope.

Download or read book Just Like Me!: A Book about a Girl with a Rare Disease written by Anne Rugari and published by Braughler Books, LLC. This book was released on 2018-10-30 with total page 22 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Download or read book This Boy We Made written by Taylor Harris and published by Catapult. This book was released on 2023-01-17 with total page 273 pages. Available in PDF, EPUB and Kindle. Book excerpt: A Black mother bumps up against the limits of everything she thought she believed—about science and medicine, about motherhood, and about her faith—in search of the truth about her son. "The memoir dedicates important space to the numbing bureaucracy that often accompanies medical visits, particularly as seen through the eyes of a Black woman in the South. Having moved often within White neighborhoods and educational institutions around her home in Charlottesville, Harris is unflinching about her periodic unease in those quarters. . . Harris also brings humor to bear in moments of great adversity."—Karen Iris Tucker, Washington Post One morning, Tophs, Taylor Harris’s round-cheeked, lively twenty-two-month-old, wakes up listless, only lifting his head to gulp down water. She rushes Tophs to the doctor, ignoring the part of herself, trained by years of therapy for generalized anxiety disorder, that tries to whisper that she’s overreacting. But at the hospital, her maternal instincts are confirmed: something is wrong with her boy, and Taylor’s life will never be the same. With every question the doctors answer about Tophs’s increasingly troubling symptoms, more arise, and Taylor dives into the search for a diagnosis. She spends countless hours trying to navigate health and education systems that can be hostile to Black mothers and children; at night she googles, prays, and interrogates her every action. Some days, her sweet, charismatic boy seems just fine; others, he struggles to answer simple questions. A long-awaited appointment with a geneticist ultimately reveals nothing about what’s causing Tophs’s drops in blood sugar, his processing delays—but it does reveal something unexpected about Taylor’s own health. What if her son’s challenges have saved her life? This Boy We Made is a stirring and radiantly written examination of the bond between mother and child, full of hard-won insights about fighting for and finding meaning when nothing goes as expected.

Download or read book Strong Girl, Brave Girl written by Kelsey Baldwin and published by Paper + Oats, LLC. This book was released on 2018-09-14 with total page 248 pages. Available in PDF, EPUB and Kindle. Book excerpt: When life-changing pain is coupled with the welcoming of a new story for yourself, the word bittersweet just doesn't do it justice. You are quite literally in the middle - anchored between where you thought you were headed and where you're going now. In that uncertain middle space is where this story takes place, and maybe where you find yourself, too. The life Kelsey Baldwin had imagined for herself, the one she was right in the middle of, quickly crumbled around her on a single day as she was faced with a looming divorce while staring at a positive pregnancy test. It wasn't the way it was supposed to go. With each uncertain transition she went through - divorce, pregnancy, giving birth, moving cities, dating, raising a child without a partner - she clung to what she knew for sure: she was a strong girl and a brave girl, and the middle was not the ending. (Spoiler: that's why it's called the middle.)My story might look really different than yours, but I'm willing to bet you find threads from my messy middle that are also woven into yours.

Download or read book Wesley the Owl written by Stacey O'Brien and published by Simon and Schuster. This book was released on 2008-08-19 with total page 243 pages. Available in PDF, EPUB and Kindle. Book excerpt: Chronicles the author's rescue of an abandoned barn owlet, from her efforts to resuscitate and raise the young owl through their nineteen years together, during which the author made key discoveries about owl behavior.